Saturday, September 27, 2014

What is conspiring and taking place

     So since this last hospital stay was bogus, I am on 15 mg of haldol. I am having side effects from it with akathesia and fatigue. My psychiatrist upped my strattera to 80 mg to combat my comprehension skills with reading and memory. She says I'm doing better, but for some reason...I just do not buy that. I don't feel any better than when I went in the hospital. I am still having severe swelling of my limbs, constant fatigue/dizziness/pain in my left leg and hip, still jittery and feel like I am uncomfortable in my own skin because I may be having either a panic attack or psychotic break at nights. It has gotten better since my b12 shot, but it is still bothersome. I now have neuropathy from whateverthehell is going on in my body. My c reactive protein is 23 now, which means I have a lot of inflammation in my body. Do not worry, I am going to my GP on Tuesday for more tests and my regular 3 month check up. I hope she can at least prescribe prescription strength vitamin d to me as mine is very low. 

       That is not exactly what this post is about. I have been looking at colleges again and it is looking more like we should move to Memphis before Colorado. I have restarted the process of admission to the Memphis College of Art and have started one for Clayton for the University of Memphis. We are both doing really well in our classes online. We both have a 4.0 this semester and midterms are coming up in the next three weeks. I have even looked into buying a house, but with him not having credit during his incarceration, we cannot buy one until I get him some credit started, pay off my car, and get my student loans in deferment for over a year from the first payment date. There is even a class to pay for the downpayment and closing costs of the loan. Tennessee Housing Development Authority is pretty on the ball about getting people into houses. I meet all the other criteria, but being on disability, I just do not seem to make enough for it by myself. Plans change. I am still doing fine arts, and nothing is going to hold me back. I may have to continue having to go part time, but I can do this. I cannot wait to go to an art school. Hopefully with my updated portfolio, which I will post sometime soon, I can get a better scholarship. Also, with vocational rehabilitation, I have to go full time to get benefits with books, supplies, and tuition. MCA seems to be the perfect fit for what I want to do and we should be able to move by the summer because Clayton will be off of probation, hopefully by then. A lot of things suck, but my love for him never waivers. We will be able to figure out some more of the details by March, since he should be approved by then. 

      Here's to prayers and good wishes. 

agape,
Whitney
















Tuesday, June 17, 2014

Dimensions

This is the price you pay for time travel
Raw liver and onions
Minced grounded cedar chips
An early grave from a disfunctional brain
Medicines, medicines, medicines
Such a small price to play the fool
Guinea pigs and lab rats, we are in this modern babylon
Succubi and demons rule the mind in times such as these
Hallucinations, delusions of this day and age. 
Hazel eyes and jewel tones announce upon our graves that we are one in the same. 
One in the same, one in the same, ONE IN THE SAME. 
rebels, they are
Mercury they fall
Lithium they heal
Thorazine zombie rules them all
Owl tail feathers in a glass jar high upon the shelf of self determination
Prevails with strength from disembodied voices of the deity you seek. 
Control our minds, chakras, numbers, numbers, numbers. Speak and so we shall seek the truth. 
I do not like this, the thunder rolls in on a hot summers day. 
The humidity of nature's sweat glands upon your neck. Sickly sweet
Martyr saint lover whore. 
What more can be asked? 
What more could be said?
Deathly hallowed and a wrinkle at best, in time. 


Friday, May 30, 2014

My invisible illness(The American Dream, no longer)

Once upon a time, I believed the American Dream was real, tangible in most aspects. You know, the perfect job, perfect house with a picketed fence, two kids, and a dog. I saw this as achievable and attainable.
What I did not for see was the depression that would hold its grip on my future of normalcy. I was 13 when I had my first bout of depression. The answer was lexapro. I stayed on it a year and felt somewhere near a median of emotions. When my stepfather died at age 17, I went back to the doctor complaining of mood swings, rage, and depression. I was handed Welbutrin XL. 
After going to college three hours away from my family, reality hit. I started having anxiety attacks, I couldn’t sleep or I would oversleep. The depression and rage had worsened, so the doctor gave me Zoloft and Buspar. I was suicidal.
I started what I thought would be a good outlet for me, a photography internship. I was continuing to struggle for reality. I realized time was slipping away for the American Dream for me when I had to drop out of college because of my mental health. I did not realize there were resources for students in need of such things. I had never gone to therapy full time. 
  It took six months, but eventually my illness invaded my work life and caused so much stress and discourse that I was let go. I came home to my family who only brought up the past mistakes I have had. 
I got another job at a call center. I continued to get worse, the paranoia, the depression, the rage, diminished concentration, racing thoughts, imaginary shadow creatures, sleep paralysis, insomnia, the list goes on and on. At one point, I thought I was talking to my step father through the man in the moon. I realized I needed help. Suicidal ideations would not let up.
My first inpatient stay was quite similar to jail. It was not helpful in the sense of a cure all. How I wanted it to be...Remeron and trazadone later, I was given a personality disorder as a diagnosis, after only twenty minutes of seeing the doctor in seven whole days. Do hospitals really send out bills for this? YES.
Along the way to my next stay, I have met my now husband, friend, and confidante. I never thought I would be able to give my heart fully to someone after the damage was done mentally. He has been wonderful in my illness and struggles, whether they be perceived or real. I have three really wonderful friends that have seen me change and the consequences of medicines. I am talking about you three, Jacqui, Chance, and Sara. 
After so many medication changes, doctor changes/visits, several diagnosis(still working on confirming schizoaffective disorder with bipolar type versus bipolar one with psychotic features), four therapists, CBT(cognitive behavior therapy), and anxiety,anxiety,anxiety, I have learned that this is permanent and my whole life revolves around managing symptoms. I have come to realize that I may never work again. I am on full time permanent disability.
The one thing I have never really wanted was to bring a child into this world that had to struggle for its life. Now that I am married, I have to think of my genetic coding and being on medications. Can I even get pregnant? What about all of the fertile women that have children, they didn’t worry about these things. These pills are not meant to be conducive to anyone’s physical health, let alone a fetus. I would have to be strong enough mentally to be medicine free and stable enough to not need the drugs. 
I am now on a regimen of propranalol(for anxiety), vistaril(for anxiety), straterra(for concentration), lamictal(for moods), and haldol(for the rage and psychotic symptoms). They only work about 60 % of the time, the rest is pure will power and lots of therapy. I have been on almost all the drugs on the market for all of those things I have mentioned. 
The psychosis worsened when I came home and my mother is still in denial. She thinks the medicines I have been on caused it. I don’t understand. She assumes so many different things about me, but is only around me for a couple of hours a month, if that. My grandmother, on the other hand, has been supportive and looks up my symptoms, disorders, and tries to help me with my coping skills. She encouraged me to seek help when I was at my lowest point and continues to advocate for my health. A lot of people do not know how hard it is to live with a mentally ill person. 
Sometimes, I still feel like I am a burden, but I am getting to the point where I have accepted where I am in life. I am back in school and not doing terrible. I still have outbursts and hallucinations, but now I also know that I am not alone. My support system of friends and family have been a lifesaver. My case manager(like a social worker) has been great. I have a wonderful and thoughtful therapist. I still feel like just a number to most doctors though; just another person to have pills pushed down their throat until they are “well” or in “remission.” 
I am no longer homeless; I live with my husband, and 3 cats and a dog in our own house. I am almost to the point where I can no longer drive. I cannot go to places where a lot of people are gathered, such as a mall or Wal Mart. I can, however, go to small home town stores and to my doctor appointments without major incident. 
I was watching Benny and Joon earlier. It could have come to the point where I had to be in a group home. I have just enough normalcy to me, one foot in reality if you will, where hopefully I never will. My husband would not allow it and would fight to keep me. I always just say...it’s just your illness, this is not real or permanent right now.

So here it goes....for those of you who knew me before I became this ill, I am still Whitney Wages. The stigma is real and perhaps I will lose some of you as friends. BUT FOR NOW, let the song continue....


Thursday, April 24, 2014

Why me?

I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. I am just so tired. 

I. Am. Just. So. Tired. 

Tuesday, February 25, 2014

Wedding shenanigans

Bibio- Lover's carvings

Lovers' names, carved in walls
Overlap, start to merge
Some of them underneath
Maybe they appear
In graveyards
Maybe they fade away
Weathered and overgrown
Time has told
Meaningful hidden words
Suddenly appear, from the murk
Maybe they're telling us
That the end
Never was
Never will
The words have gone
But the meaning will never disappear
From the wall













We got legally married on October 31, 2013. We celebrated with friends and family on December 21, 2013 in Tupelo, MS at Ourartworks where I volunteer and participate in art therapy. These are just a sampling of pictures from the wedding. I still need to upload them to Facebook once I crop them and these are unedited completely.


Our vows were so sweet. I couldn't get over the amount of love radiating off of us and the people there. Sara Morse, you are one amazing lady. Thank you for being there with us and taking lots of pictures(even though there are some of the floor, lol). Thank you to our friends and family that made it out. I am still working on thank you cards from then and our shower we had. We are truly blessed with the best thing possible...agape(unconditional love).